Page 17 - TalkCare_Issue5_Online.qxp_OACP Talking Care Issue 4 July 2017
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  Information and Support
Every hour, someone in the UK is told they have Parkinson’s. Because we’re here, no one has to face Parkinson’s alone.
Who is affected?
Parkinson’s affects 145,000 people in the UK - which is around one in 350 of the population. Most people who get Parkinson's are aged 50 or over but younger people can get
it too.
What is Parkinson’s Disease?
Parkinson's is a degenerative neurological condition, for which there currently is no cure. People with Parkinson's don't have enough of a chemical called dopamine because specific nerve cells inside their brain have died. It’s unknown why this happens.
What are the symptoms?
The main symptoms of the condition are tremor, slowness of movement and rigidity. Other symptoms include tiredness, pain, depression and constipation.
How does it affect people?
Parkinson’s can make simple everyday activities like eating, getting dressed, or using a phone or computer, difficult or frustrating. It is a fluctuating condition, often changing day to day and even hour to hour.
Is there a cure?
There is currently no cure for Parkinson's. Medication is the main treatment for people affected by Parkinson’s but surgical options are available for some. Current treatments do not stop, slow down or reverse the condition or its effects which is why we urgently need to fund research to find better treatments.
Where can I get help?
Parkinson's UK is the UK's leading charity supporting those with the
condition. Its mission is to find better treatments and ultimately a cure, and improve life for everyone affected by Parkinson's through cutting edge research, information, support and campaigning.
Carers and their families come together via our network of local groups. Specialist nurses, our supporters and staff can provide information and training on every aspect of Parkinson’s.
Helpline
The Parkinson's UK helpline service is FREE, calls are confidential,
support is given to anyone affected by Parkinson's.
Phone: 0808 800 0303
Text relay: 18001 0808 800 0303 (for textphone users only)
Opening times:
Monday-Friday 9am-7pm, Saturday 10am-2pm
(Closed Sundays/Bank Holidays).
Email: hello@parkinsons.org.uk
If you contact us by email or online, we'll come back to you within 5 work- ing days. If you'd like a speedier re- sponse, it may be quicker to phone us.
Research - seeking a cure
As the UK’s Parkinson’s support
and research charity we’re leading the work to find a cure, and we’re closer than ever. Our work is totally dependent on donations. Help us to find a cure and improve life for everyone affected by Parkinson’s today.
https://www.parkinsons.org.uk/ get-involved
 Lead researcher of the study from Northumbria Healthcare NHS Foundation Trust and Parkinson’s Nurse Consultant Annette Hand adds:
“Carer strain is a recognised consequence of caring but by looking in detail at the profile of carers, the tasks they are per’forming and how many hours in the day they are dedicating to them, we can see a clear risk that as the condition progresses, the strain on carers is likely to become unsustainable.
“Through the study it became apparent just how much of an impact advanced Parkinson’s has on whole households. We spoke to spouses but also sons and daughters who were living with a parent to care for them.
“Our findings show a clear need for support to be in place for people in a caring role, not just the person with the condition.”
Support for carers
Parkinson’s UK offers a range of support for family, friends and carers, including access to local advisors and support groups.
The charity has a Carers Guide (see above) with useful hints and tips on caring for someone with Parkinson’s.
Visit: https://www.parkinsons.org.uk/ information-and-support/caring- someone-parkinsons
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